Thursday, December 31, 2020
Wednesday, December 30, 2020
Sunday, December 27, 2020
December 27, 2020
Sometimes it's a pretty good day, and I can cook an easy meal or go to the doctor. Other times it's a rather difficult day when I can't do so much. This was one of those days.
I was a whole lot worse this past summer for several months. And it will happen again. It's hard to say.
Thursday, October 22, 2020
Handmade flint and chert marbles. Made in Celina, Tennessee for Rolley Hole players. I've seen them being made. I've played with them many times, mostly the dark one. They are small shooters, perfect for the hand. The championship Rolley Hole tournament is held at Standing Stone State Park every year. Most of the champion players are as old or older than me. The "junior" category is age 35 and below. I have never seen a kid in the game.
Wednesday, October 21, 2020
These are the marbles I carried around with me in a marble bag in case a game ever came up. I carried around about a half dozen small shooter marbles to make sure I always had one that could be identified as mine and not get confused with someone else's shooter on the yard. The smaller player marbles came and went as games were played, due to marbles generally being a "for keeps" game. (And no it's not cruel to keep kids' marbles you win, because marble players of all ages understand that rule.)
In 2004 Hurricane Ivan hit land and came through Tennessee as a tropical storm. It rained 14 inches or more, if I remember right. I was working at Fall Creek Falls, which flooded. Cane Creek got so high and turbulent that the cascades almost completely disappeared because of the height of the water. The road going out the north entrance to the park near the Nature Center was flooded; and the bridge and road were flooded that bypasses the Village area to get from the North to South entrances.
Monday, October 19, 2020
The doctor is monitoring my left leg for possible nerve problem. Could be caused by spine compressing on nerve or from cancer growing into my spine. I will have a CT scan soon, and then maybe a MRI to get a closer look.
Saturday, October 3, 2020
Some of the photos I sent to Mason Simpson in bootcamp 2 years ago to help cheer him up. Includes his writings on my signature quilt, among others, and some of my newest handmade boulder marbles. Some have flecks of gold and silver inside of them. Some made from German glass rods used to make marbles that were brought to the US after the war.
Monday, September 21, 2020
Sunday, September 20, 2020
Saturday, September 19, 2020
Thursday, September 3, 2020
Thursday, August 13, 2020
The doctor discussed with me the options of continuing in the study or leaving it. He related it to quality of life and was concerned about how bad off I was last treatment cycle. I told him I'd rather keep going until I get my next CT scan and then use that added information to help make the decision. He lowered my test drug dose from 50mg twice to 40mg twice a day and kept me on my fluid reduction medication.
I don't go back to see them this treatment cycle, so have to keep aware of my situation and call them if things start to go downhill intolerably.
It's hard to make decisions like this. As each time I leave a treatment mode, I have fewer and fewer options. I'm running out of them as is. Only one more I know of, and that's Stivarga. 😱
Tuesday, August 4, 2020
- I could barely walk and was using my walker.
- Oxygen level was 78 when I arrived. They put me in a wheelchair and hooked me to an oxygen tank.
- My blood pressure was high. The nurse said it was probably from my body having to work so hard.
- Oxygen level went back up after being put on oxygen. But I still couldn't catch a breath.
- They sent me for a CT scan. It showed fluid buildup around my right lung, not allowing it to expand to breathe.
- I was scheduled to have the fluid removed the next day.
- Fluid removal at hospital.
- Going to be set up on oxygen for home and travel back and forth to treatment.
Wednesday, July 29, 2020
- Sunday 7/26 started breathing a little wheezy. Got somewhat worse on Monday.
- April said start taking the pee medicine like I was before the dosage was cut down. Three of that one 20mg pill instead of two. And the 50mg instead of the 25mg of the other.
- My lower back seems to hurt to the degree my wheezy breathing gets better or worse.
- I went to dermatology today and they would not see me. The receptionist said that TennCare is my primary insurance (not Medicare), and that they do not accept TennCare. I told her that Sarah Cannon might be paying for it and would she call them. She said it was too hard to get through to them and I should get another dermatologist.
- She will look for another dermatologist for me to go to.
- Only take one test drug pill today and then keep taking them as normal.
- She may change my schedule next week so that I can come and see the doctor while I'm there.
Sunday, July 26, 2020
It's been a hard day. I actually cooked a meal to share with my mom, stepdad and sister. I also did a load of laundry. Mother helped me clean up as usual.
I'm worn out and am taking myself to my next oncology appointment this week, which also includes a dermatology appt. in a different place.
It was hard explaining to my mom that I must do all that walking, even if I'm using a walker, as long as I can before defaulting to a wheelchair permanently. And that each and every step I take for the rest of my life will be a struggle in itself.
I think the worst part of having cancer is having it in front of my own parents. I fight hard to keep what I've got, but as time goes by more and more of my abilities disappear. I'll hang on to them as long as I can.
And that's just how it is budrow.
Thursday, July 23, 2020
The doctor said:
- Stay on reduced level of lasix
- He will have the nurse make an appointment with dermatology about my skin rash
Tuesday, July 21, 2020
The drug has so far given me a rash and acne on my face, neck, head and chest. It's about as bad as the previous drug I was taking, except this one bleeds a lot. So I have blood running down my face often.
It has also caused me to gain about 2 pounds a day, for a total of 30 pounds during my first two weeks. Much of this is fluid, but has caused me to be unable to walk without a walker or to walk across the house without resting.
I have been put on a fluid pill to help with getting rid of some of the swelling. It has helped a lot, but I still need a walker. There are also other problems caused by this that are too difficult and embarrassing to talk about.
I think I mentioned that my second lung biopsy had to be cancelled due to an inability to breath without coughing and wheezing when lying backwards. It may be rescheduled or cancelled completely.
I have to be let out at the door of the hospital and pushed in a wheelchair and cannot walk around my house.
Any other symptoms I have are from the multitude of blood draws, EKGs and ECHOs. I will know if my cancer has been growing or not after my next CT scan in a few weeks.