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Thursday, January 17, 2019

C5D1 Infusion and Scan

This is the last infusion infusion as far as the original study plans in the beginning. The CT scan showed "stable". There were some measurements that increased and some that neither grew nor shrank. There was one that shrank some. So over all I feel great about it. The plan is to continue with the treatment on the same 21-day cycle. Because we are going beyond the study labs, I will not have to return in between visits for labs or other tests. Data will still be collected, and I am still in the study. This is the best, most hopeful visit yet in this round of treatment.

The doctor and team agree that we are on a good track, even if the cancer is not eradicated. I can live a higher quality of life without all the side effects of traditional chemotherapy. The cancer is growing slowly enough that I don't have to worry about a time limit coming soon. I now have hope I will see friends and family graduate college, get careers and move into the spot where they start their families. This is good!

The CT scan also showed a kidney stone. Hum! I guess I'll be dealing with that pain whenever it decides to do it's thing.
My latest new tobacco pipe for my collection

Friday, January 4, 2019

C4D8 Labs

My sister went with me for my labs. She had an eye appointment at the same complex, so it worked out well that we could ride together. She had to have a driver. I'm glad I could help. I know from experience it can be difficult to find a driver. People love to offer to help, but when it's crunch time, they have to work or take care of children or whatever. I know this is the reality of it, but I also think that others don't really put out an honest effort to help. Some people seem to only want to help when it involves no inconveniences or sacrifices. Those people missed the point of helping behavior. I'm glad to have some people in my life who are willing to make the sacrifice to help.

I met a woman in the Drug Development Unit who had the same CT guided robotic lung biopsy I had three times. The robot cut a vein in her lungs. She woke up from her biopsy in ICU. This backs up my apprehension to what is considered routine biopsies. They are still surgeries. You never know what will happen when you're on the slab. Two months later she is still having trouble breathing. So trying to develop a plan for her breathing has been added to her cancer treatment. Kind of like my peripheral neuropathy, but much worse.

A new quilt square for my cancer support quilt